Saturday, February 13, 2010

thanks...

I (Amy) just want to say a quick thank you to SO many of you who have been so supportive of us this past week. All of your thoughtful notes, comments, emails, calls, and prayers for us have really meant the world to me. (I'm so sorry I haven't been able to personally answer each one.) And even though Caroline's eyebrows are almost completely gone, I have felt an inner peace and strength since posting the request this week. Since that request, Marc & I have also seen a small row of tiny blonde eyelashes on one eye as well.


I have also spoken to an AWESOME gal named Molly (pictured above with permission) who has struggled with hair loss & regrowth for over 14 years-- hearing her story, her faith, her confidence, her humor & outgoing personality, her candidness, (is that a word?) and her wisdom was SO encouraging to me. It was evident God has used her hair struggle to turn her into an even MORE beautiful person than she already was. (though it's not always pleasant at the time...)

I am praising God for those small glimpses of grace. I know this whole thing is likely going to be a long process-- could be several more months or it could be many, many years, and I'm going to need His grace to endure, especially in the quiet times when all the terrible emotions kick in.

I am convinced the Lord hears the prayers of His people, and He is certainly at work. Especially in my heart.

Thank you again.

(stay tuned for lots more upcoming pics with sweet Caroline... afterall, it's a big BIRTHDAY week around here! So exciting!)

Wednesday, February 10, 2010

mommy loves...

I am growing up so fast & reaching new milestones all the time! You guys wouldn't believe the complete sentences I'm making! Here are a few of the things I do that Mommy loves...


Whenever I catch a balloon now, I love to scream & shrill with excitement!


Yep, Mommy's got me doing laundry. (I like it when she gives me a job!)


I'm even emptying out trash cans around the house.

And the moment that Mommy loves the most each day...

(gasp!) Daddy's home!!!
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Tuesday, February 9, 2010

where i put my trust...

Could I (Amy) ask for you to pray (or continue to pray) for us? I'll try not to go into more boring details than necessary, but here's the situation:

Caroline continues to lose hair, and she has now completely lost all her eyelashes under one eye. (that is so heart-breaking) The rest of her eyelashes and her eyebrows are extremely thinned out. This started in mid-November, so we are on month number 3 of this, and I think it's natural that Marc and I are fighting against feelings of anxiety, discouragement, depression, etc. as each day we watch our daughter begin to resemble a cancer patient more than the healthy, thriving & active 2 yr. old that she is. (Bloodwork has shown us that this is not an internal health issue thankfully.)

Right now the doctors (we've got the top dermatologist at UVa) have it narrowed down to 2 options. In either option, from what I read online, it seems like Caroline's case is rare and severe. In option #1- the hair will probably all grow back at some point (could be several months, whenever her little system decides to start growing) and all of this is over. Option #2- the hair will probably grow back at some point, but this would likely be a life-long condition with cycles of hair loss and growth. This hair-loss could also potentially be permanent. If it's a particular type of this hair loss, she could lose all of the hair on her body and never have it again. The main thing is that with either option, there are varying degrees of severity and the course of the conditions can take a NUMBER of courses, mild or severe. So this could all be over in a year, or this could just be the beginning of a life-long journey, or somewhere in between.

And so we just have to wait and watch. There is no treatment for either option on someone so young. And waiting on hair to start growing is not easy on Mom & Dad, especially when you see a strand of hair left on her chair or an eyelash fallen on her cheek after her bath.

And the internet is a great thing, but I gotta tell you, sometimes it is simply NOT a help. I made the mistake last night of doing some more research on these two health conditions. I must confess-- I saw the pictures and burst into tears.

It's at times like these that I'm so thankful I'm a believer. If all I had was the internet to "comfort" me and tell me the probable course of Caroline's hairloss, I would be even MORE of a wreck than I already am! (sometimes I can't imagine that...ha!) But I have a BIG God. He is in control, and He loves me and my daughter. He could heal her, or He could choose to use this suffering in our family's life as part of His ultimate plan. My God is no stranger to suffering, as He watched His own SON suffer on a cross for us. And Jesus told us clearly, "In this life you WILL have trouble. But be of good cheer, for I have overcome the world." Someday all these things that aren't the way they're supposed to be WILL be made right, and I can rejoice in that.

But right now doesn't feel like the time to rejoice. Nevertheless, I'll put my trust not in how I feel or what I see. (especially because what I SEE is a balding head) Like Abraham, I live by faith, not by sight. But I put my trust in a God who tells me in His word:

"Why, even the hairs of Caroline's head are numbered. Fear not; she is of more value than many sparrows." (Luke 12.7)

"For I know the plans I have for Caroline" declares the LORD, "plans to prosper her and not to harm her, plans to give her hope and a future." (Jer. 29.11)

So no matter how many (or few) hairs the Lord has planned for Caroline's precious little head, pray that He would give us the comfort, grace and strength to endure through it all and trust in His ways. Thank you, sweet friends & family, for praying.

Saturday, February 6, 2010

snow & skype...

(Yea! Post #700! Fill in with celebratory music here ______.)


This is the scene in our backyard today. (pretty, right?) It has finally quit snowing, but church is canceled tomorrow for the second week in a row! Such a bummer.


Last weekend we headed out to the park with our RUF intern, Parker, to do some sledding.


Photo op before the ride. :)


Woohoo! And even though my expression looks otherwise, I really did enjoy it, Parker!


But this is what I enjoy the MOST about snow... eating the stuff. Yummm...

You know what else I like to do when we're snowed in??


Take piggy-rides around the house...


...and skype with my grandparents, Nanny & Papa, and Mamie & Pop! They're a hoot!
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Friday, February 5, 2010

indoor fun...

We're snowed-in AGAIN! (the 2nd weekend in a row!) If you're paying attention to the national news, this storm is quite a biggie. The snow is expected to continue through tomorrow (Sat) with expected totals of up to 12" here. (We know many of you Texans probably think this is "normal" for Virginia, but trust us-- it hasn't snowed this many times since the 1980's.)

Anyways, when it's yucky outside, you gotta find ways to have fun inside, right?

Well, there seems to be no shortage of creativity over here. :)





And guess what?

On the next post, we'll be celebrating post #700! Let's party, Leah!
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Wednesday, February 3, 2010

february flashback #2...


Two February's ago, I listened to the funny sounds Mommy made as she read to me.


And now, I'm picking up books and saying some of the words on the pages!


Last February, it wasn't hard to tell you with my fingers how old I was...


...this year is posing a bit more of a challenge. ha! :)
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Tuesday, February 2, 2010

people say the funniest things...

Ever noticed how people react to you when you're going through any type of suffering? A friend of mine who also struggled with infertility for years once told me she wanted to write an entire BOOK about the stupid things people had said to her over the years in the hopes of "comforting" her. I'm sure it's the same across the board, whether you're facing grief or health issues or financial stress or singleness or you-name-it... people just say the funniest things!

Not only did Marc & I find this to be true throughout our years of infertility, but now we are facing a different type of struggle and yet the reactions we get are pretty similar. Many of you know that our almost 2-yr. old daughter's hair is falling out (it started in November and is continuing each day), and though we know what it MIGHT be, (there are two working options we're going on right now) it remains mostly a mystery. Up until now, I have remained mostly silent on this blog about the painful emotions that this has caused me & Marc. I think that's mostly because I don't want to expend the energy required to adequately put into words how heart-breaking it is to watch your own child "worsen" before your very eyes each day. Even though this girl is a healthy, energetic, talking-a-mile-a-minute toddler, her appearance is beginning to look more and more unhealthy as she's now losing eyelashes and eyebrows. And there's nothing I can do to stop it. Sometimes it just takes everything in me to not give in to the worry & fear that wants to wash over me. (But that's another post for another time...)

So last night Marc and I got to laughing about the funny things people say in response to our situation, and how many of the responses fit into seven categories that I thought it'd be fun to share here. (Don't worry if you've found yourself using them-- I'm sure I've used them all before myself!)

And let me emphasize that I KNOW people mean well. They really do. Very few people are out to be hurtful or insensitive. Nevertheless, just for fun, see if you've heard any of these before...

1. The "it'll happen" response- When it was infertility, the "it'll happen" response was "you'll be pregnant someday" and now with Caroline's hair loss, it comes out as "oh, don't worry. it'll grow back." If you're single, all the married people like to say to you, "It'll happen someday."

What they're thinking: They want to be reassuring, right? People just don't want you worrying unnecessarily.

What I'm thinking: While it's a nice thing to say & I'm sure in many cases, it ends up actually being true (well, except in the case of my pregnancy... ha!), it somehow doesn't comfort me. How do YOU know "it'll happen"? And what if it doesn't? And are you just trying to say something to stop us from talking about it?

2. The "I have a friend" response- Okay, here's the situation... you've just POURED out your situation to someone, and the first thing out of their mouth goes something like, "Oh, there was a girl in my church who had that..." and then they continue to recount what happened to their friend-of-a-friend's-cousin's-brother. You try your best to listen politely and decipher what it really is that they're trying to say that applies to what you just told them. (please note that this response can also include "I saw a show once about that.") Throughout our infertility, here's what we heard: "just go try to adopt and THEN you'll become pregnant! That happened to so-and-so..."

What they're thinking: I understand this one, and in certain cases, it CAN be helpful. You're trying to tell me that I'm not strange or that this situation isn't totally foreign and unique. You're trying to telling me that I'm not alone, or that you've had some "experience" with this, or that you understand. Those are great things.

What I'm thinking: Many times when I hear this response immediately after telling you something, I don't feel like you even HEARD me. More than just swapping stories, I want to know that you grasp how I'm feeling through this. At least give me a "hmmm" or a genuine "oh, I'm so sorry" before I need to hear about someone else's experience, right?

3. The "God" response- I'll just lump all the responses that include God in it into this category. This response is a popular one, particularly when you're around evangelical circles like I am. Whether it's good & helpful things like "God is in control" or a nice card with an appropriate Scripture verse on it, or some more questionable things like "you just need to have more faith," this type of response seems to be everywhere. And this one's tricky because whether it's helpful or not many times even depends on who it's coming from, what their "tone" is, and what they actually say about God. I will say that one of the most comforting things that was said to me when Caroline started losing her hair was a "God response." This person connected something we always say at our church (from the Bible) with my particular situation and it was something that I take rest in: "Not a hair can fall from my head without the will of my Father in heaven."

What they're thinking: As a believer, it's definitely important that we keep preaching the Gospel to each other in times of trial. Aren't we all (if we're really honest) just so "prone to wander" and "prone to leave the God we love" that we need to be bathed in God's word to remember what is TRUE when times get tough. It is usually from that motivation that people speak about the Lord. (I hope, at least!)

What I'm thinking: BUT! As someone who loves Jesus and already knows that God is in control, when your first response to me is to say "God is in control, Amy!," it feels more like you're just stating the obvious, you know? (as if I'd say- Oh! God is in control?? Really?? Huh! I've never THOUGHT of that!) :) Plus, in the book of Job, Job's friends used the "God" response all throughout the book, and at the end, God Himself was really mad at them! So I'm saying let's just be a little more sensitive and wise about when it's best to use the "God" response.

4. The "you should try..." response: Oh, this one is hilarious when you're dealing with infertility! If only I had a nickel for every time someone used this one! And the things that would come out of people's mouths!

"You need to just relax."
"You and Marc just need to get away."
"You should try standing on your head."
"You just need to _____"

Suddenly, everyone's wanting to invade their way into my bedroom! ha! In Caroline's case, we've already been told to feed her more peanut butter, do scalp massages, use certain vitamins and creams, and more. In a single person's life, the "you should try" response is something like this:

"You just need to lose weight."
"You need to put on some make-up or dress a little nicer."
"You need to be putting yourself more out there."
"You need to get yourself straightened out first before God can bring someone into your life." (that's a blend of the "You should try" and the "God" response...)

What they're thinking: People want to help. I know they do. I appreciate that they want to help you figure out how to fix something.

What I'm thinking: Perhaps what might be a better thing to do is to simply ask questions about what they've tried already, ask what their doctor is saying, ask what their plan is in handling this, etc. You can show alot of concern just by asking questions-- not to be probing and rude, but to see what options the person feels like they have.

5. The shock response: For this response, the person you're talking to usually stops what they're doing, drops their jaw, their eyes get wide, and they say something to the effect of "Oh my gosh, that sounds like leukemia" or "I've never heard of that. That's crazy!"

What they're thinking: They're not thinking- they're gonna give you their honest reaction. They see you freaking out, and by golly, they're gonna freak out with you. :)

What I'm thinking: Stop it! I don't need to freak out more than I already am! :) Thank you.

6. The "it could be worse" response: This one comes in different forms. It could be similar to #2 "I-have-a-friend" response where they launch into something so "obviously" worse than what you're going through. But usually the "it could be worse" response sounds like this:

"It's not that big of a deal."
"It's only cosmetic. It's only hair."
"At least you didn't ever miscarry."

What they're thinking: These people are your good 'ole fashioned optimists. They're gonna find something good about the situation and help you to see it. They want you to think on the bright side. And it's a pretty good tactic most of the time.

What I'm thinking: But you know, as I'm struggling, I'm not always needing to hear what's good about this. Sometimes I just need you to acknowledge that this is real pain and real brokenness. Sometimes I just need to hear you say, "Yeah. That is really hard."

7. The silence response: So alot of us know that people are dealing with things in their life, and yet we either don't know what to say or we're afraid of saying the wrong thing. (especially as you've just read through my rants of what NOT to say! ha ha!) So we're silent about the issue and we say nothing.

What they're thinking: I don't want to stir up any pain in them. Maybe if I ignore it, it can get it off their minds.

What I'm thinking: Maybe you don't care.

A Christian Response: As Marc and I had a good time constructing each of these categories together last night, there was one response to Caroline's hairloss that didn't fit any of these categories, and it has just really stuck with us. (came from my sister and my mom)

"Well, if this continues, we'll ALL just shave our heads and tell everybody that she gets it from her family!"

Funny, right? It's more than that. I think that's exactly the response that Jesus had to our own broken, miserable world.

1. He didn't stand back & offer empty promises: "Oh, it'll happen someday. I know it's messed up now, but someday y'all will get it together."

2. He didn't tell us a story about someone He knew who went through the same thing.

3. Jesus (being God Himself) didn't just stoop down & say, "God is in control, you little world!"

4. What if He had come and said, "Well, you know what you need to try? ____"

5. He wasn't (and isn't) shocked by any of our heinous thoughts and deeds.

6. Jesus doesn't tell me to just focus on the bright side. In fact, without Him, there WAS no bright side.

7. Praise God that He wasn't silent either! No, He loved us way too much to leave us alone.

Instead, Jesus stooped down from heaven, took on a body like ours and became LIKE US. He came to this earth to identify WITH US in our pain. He experienced it just as we do, yet without sin. He JOINED US in our suffering, and suffered the worst death on our behalf so that we might have life.

And I think if He, King over all the universe, could join in our brokenness & pain, certainly we can begin to do the same for others.

Monday, February 1, 2010

february flashback #1...

Somebody around here is turning 2 this month.. can ya believe it?! So we like to use the beginning of February to sort of "reminisce" on how far I've come over the past 2 years...


At 7 months, I was doing pretty good to sit up & use the stick thing-y & SMACK it repeatedly against the violin.


Now it's important to me that I put it on my shoulder (just like Mommy plays it!) and use the "bow" to "pway viowin."


During my first year, I'd rather have just snacked on the thing to be quite honest...


...but now I'm poised and ready to play some pretty "moogit." (music) Any requests?

And whether or not I'm a Paganini, Mommy loves her little baby girl more than ever.
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Friday, January 29, 2010

once upon a time...


There was a princess named Caroline and a princess named Leah.


They were the best of friends.


They could just LOOK at each other and crack each other up.


And they lived happily ever after.


THE END.
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Wednesday, January 27, 2010

splish splash i was taking a...


Calling all future boyfriends! Please do NOT look at the following pictures, as they will cause me great embarrassment in 15 years! :)


Taking a bath these days is serious business, folks. Concentration is KEY.


(Mommy: "where's the A?") I've just started learning my letters & I'm fascinated with 'em now! They're EVERYWHERE! Bathtime is yet another opportunity to work on them.


So far I'm REALLY good at spotting the letters W, X, O, & C.
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Tuesday, January 26, 2010

just plane fun...


Get ready for take-off!


Woohoo! Look at it fly!


(that's one little happy Daddy's girl...) :)


This couldn't get any better.


Oh no! We had a crash landing!


But it was sure fun while it lasted!
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Saturday, January 23, 2010

little touches...

Over the holidays & in Chicago with my sis, I (Amy) was able to use some of my Christmas money on a few things around the house! Of course I've always got a million ideas swimming around in my head of things I'd LOVE to do, and I certainly can't afford to do half of them, :) but here's a few of the places that were fortunate enough to get a little "uplift" this time around...




(aren't these wall decals neat? Just peel & stick!)


One word: IKEA!!!


Here are some pictures I took in my backyard this past fall. (one of the perks of living in Virginia!) I had them blown up to 11x14 & then I put them into matching frames.


I hung them up in the entryway & I think they turned out pretty good!
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