Ugh. Turn for the worse. Again.
The day after Duke, I (Amy) noticed her complexion going pale again. The dark circles around her eyes became prominent. And wouldn't you know, the poops went back to the yeasty kind. (if you don't know what that means, that's okay. Just trust me on it. I don't have the energy to explain it all. And face it- you're probably not THAT interested in hearing the variation of colors & textures of poop.) :) Discouraging.
But I was really posting to tell you all that some of the results from our Duke day are in, and most things that came back were normal. We are still waiting to hear back on some of the other tests, particularly the celiac bloodwork. (which I'm very interested in seeing what happens to those numbers after being gluten free for 6 months) However, one of her stools tested positive for giardia, a parasite. (I know! GASP!) Don't know how long THAT'S been in there!-- sounds kinda scary, right? But as I'm reading, I'm understanding now that it's a very common thing to have in your gut when you have these sorts of intestinal issues. And it's probably been in there for quite some time- more like a chronic giardia than an acute attack. And guess what? Giardia can cause loose stools, skin issues, live in your gut for months and months and "wax and wane." Many people don't ever know they actually have a parasite because their symptoms go away and improve for a little while before they return.
Anyways, as exciting as it may seem to figure out something that we can actually treat, it's most likely NOT the entire problem. But it's a part of the problem, and hopefully we'll see some more long-term improvement after we treat it with some medication this next week. Anyways, this may explain some of why her body's been trying to heal, but things seem to worsen spontaneously.
Who knows, though?! I'm so sick of thinking this may be "it" only to be heart broken again when things begin to improve and then fall apart again. I'm thankful, though, that it still seems like it's 2 steps forward and 1 step back overall.
I'm just waiting to wake up someday from this bad dream and it'll all be okay... and maybe my family will be able to eat gluten again. :)